We have this hope

On the morning of May 20, I learned from a friend that one of my best friends from school had been in a car accident on a country highway, just the previous afternoon. The car lost control and rolled. Four of the occupants (including my friend) escaped with their lives. Tragically, however, my friend's daughter—not quite five... Continue Reading →

Down, but not out

This week, I don't have much to say here. Last week, I went out not once, but twice (in a row!), which is something I would normally try to avoid at all costs. Unfortunately, as a result, the post-exertional malaise (post-exertional neuroimmune exhaustion) has been punishing me in the days since. I am not sure... Continue Reading →

Almost reunited

This weekend just past, I missed a reunion. I was by no means the only class member who didn't show (in fact, about two thirds of the class didn't make it), but it was nevertheless disappointing not being able to go. Thoughts of "if only I were feeling better!" were replaced by "maybe it won't be that great. Maybe I'm... Continue Reading →

May 12: ME Awareness Day

The International Day of Awareness for Chronic Immunological and Neurological Diseases is on May 12. (This year also marks the 25th Anniversary of the May 12th Awareness Day—more details about this day, and its history, are at the above link.) My main focus for this post is Myalgic Encephalomyelitis (abbreviated as 'ME'). You could be forgiven for asking, "Myalgic encepha-what-now? What... Continue Reading →

Challenges of going to church

Last weekend, I decided to try going to church. It had only been more than twelve months since the last time! While feeling 'too worn out and unwell' is my usual reason for avoiding church, it's also true that over time, I lost the desire to go. This wouldn't be surprising to anyone with a chronic illness. After... Continue Reading →

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