The dark sacred night

Our dog is highly sensitive to thunderstorms. If there is a storm anywhere within, say, 200km or so, she will let us know about it before we even think to check the radar. I remember one night staying outside with her, right into the early hours of the morning. There was some persistent thunderstorm activity... Continue Reading →

I’m tired

If a person with Myalgic Encephalomyelitis (ME) says "I'm tired", it's not the kind of tired where you go to bed, sleep through the night, and wake up feeling better the next day. Unfortunately. The 'tiredness' of a pwME (person with ME) is usually code for "I'm experiencing post-exertional malaise", also known as post-exertional neuroimmune exhaustion.... Continue Reading →

The science of gardening

Been a few weeks since my last blog post, so I thought it was about time I posted an update. (It's not that nothing's been happening; rather, much has been happening, and I just haven't posted about it. When I say 'much', that is, relative to what is usually going on in my world, which is...... Continue Reading →

The dawn will come

I stumbled across this quote by Anne Lamott earlier this week: “Hope begins in the dark, the stubborn hope that if you just show up and try to do the right thing, the dawn will come. You wait and watch and work: you don't give up.” Be encouraged. Keep going!

We have this hope

On the morning of May 20, I learned from a friend that one of my best friends from school had been in a car accident on a country highway, just the previous afternoon. The car lost control and rolled. Four of the occupants (including my friend) escaped with their lives. Tragically, however, my friend's daughter—not quite five... Continue Reading →

Down, but not out

This week, I don't have much to say here. Last week, I went out not once, but twice (in a row!), which is something I would normally try to avoid at all costs. Unfortunately, as a result, the post-exertional malaise (post-exertional neuroimmune exhaustion) has been punishing me in the days since. I am not sure... Continue Reading →

Almost reunited

(Photo credit:   // This weekend just past, I missed a reunion. I was by no means the only class member who didn't show (in fact, about two thirds of the class didn't make it), but it was nevertheless disappointing not being able to go. Thoughts of "if only I were feeling better!" were replaced by "maybe it won't be... Continue Reading →

May 12: ME Awareness Day

The International Day of Awareness for Chronic Immunological and Neurological Diseases is on May 12. (This year also marks the 25th Anniversary of the May 12th Awareness Day—more details about this day, and its history, are at the above link.) My main focus for this post is Myalgic Encephalomyelitis (abbreviated as 'ME'). You could be forgiven for asking, "Myalgic encepha-what-now? What... Continue Reading →

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